Sec.19a-2a-15. Newborn screening system

(a) General nature and purpose

(1) Location. The newborn screening system is located at 999 Asylum Avenue, Hartford, Connecticut.

(2) Format. Personal data is stored in the newborn screening system in a manual form.

(3) Purpose

The purpose of the newborn screening system is to track infants found to have a serious problem as a result of a blood test done right after birth.

(4) Official responsible. The director, maternal infant health division is located at 999 Asylum Avenue, Hartford, Connecticut, and is the official responsible for the newborn screening system. Requests for disclosure or amendment of the records in the system should be directed to this official.

(5) Routine sources. Personal data in the newborn screening system is received from any laboratory carrying out a newborn screening test.

(6) Legal authority. The collection, maintenance and use of personal data in the newborn screening system is authorized by Connecticut General Statutes, Section 19a-55.

(b) Categories

(1) The categories of personal data maintained by the newborn screening section include, but are not necessarily limited to:

(A) name of infant;

(B) name and age of mother;

(C) sex of infant;

(D) birthdate of infant;

(E) address of mother and father;

(F) telephone number of parents;

(G) place of birth of infant; and

(H) medical information on the infant.

(2) The category of other data maintained in the newborn screening system is information on services received by infant.

(3) Categories of persons on whom records are maintained are:

(A) newborn infants; and

(B) parents of newborn infants.

(c) Uses

(1) Routine uses

(A) Users. The newborn screening system is used by program staff.

(B) Purpose. The newborn screening system is used to ensure that the infant received proper treatment and follow-up.

(2) Retention. Records for each personal data system are maintained in accordance with schedules prepared by the Connecticut State Library, Department of Public Records Administration and records retention schedule as approved by the Public Records Administrator as authorized by section 11-8a of the Connecticut General Statutes. Retention schedules shall be maintained on file at the office of the official responsible for the data system and may be examined during normal business hours.

(Adopted effective August 24, 1995)